Psychometric findings and normative values for the CLEFT-Q based on 2434 children and young adult patients with cleft lip and/or palate from 12 countries
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Psychometric findings and normative values for the CLEFT-Q based on 2434 children and young adult patients with cleft lip and/or palate from 12 countries
Vargas, Federico; Longmire, Natasha M.; Cano, Stefan J.; Chan, Andrew J.; Goodacre, Timothy E. E.; Munill, Montserrat; Peterson, Petra; Tsangaris, Elena; Baker, Stephen B.; Allen, Gregory C.; Mahony, Aisling O.; Courtemanche, Douglas J.; Klassen, Anne F.; Riff, Karen W. Y. Wong; Albert, Asteria; Stiernman, Mia; Slator, Rona; Goldstein, Jesse A.; Aguilera, Mirta Palomares; Harman, Karen E.; Forrest, Christopher R.; AYDIN, Mustafa Asım; Pusic, Andrea L.; Tholpady, Sunil S.; Dreise, Marieke M.
BACKGROUND: Patients with cleft lip and/or palate can undergo numerous procedures to improve appearance, speech, dentition and hearing. We developed a cleft-specific patient-reported outcome instrument to facilitate rigorous international measurement and benchmarking.